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The prose below is by Emily Perl, mother of a child with a developmental disability. It was distributed in 1999 as an insert to
the Williamson County Recreation Center's newsletter sent to their "special needs"--that is, handicapped--population.
It is perhaps the best expression of what it's like to be a parent of a retarded or disabled child that I have ever seen.
When you're going to have a baby,
it's like you're planning a vacation to Italy. You're all excited.
You get a whole bunch of guidebooks, you learn a few phrases in
Italian so you can get around, and then it comes time to pack your
bags and head for the airport--for Italy.
Only when you land, the airline attendant
says, "Welcome to Holland."
You look at one another in disbelief and shock,
saying,"Holland? What are you talking about? I signed up for Italy!"
But they explain there's been a change of plans, and you've
landed in Holland, and there you must stay. "But I don't know
anything about Holland! I don't want to stay," you say. But you do stay.
You go out and buy some new guidebooks, you learn some new
phrases and you meet people you never knew existed. The important
thing is that you are not in Italy, but neither are you in some filthy,
plague-infested slum full of pestilence and famine. You are simply
in a different place than you had planned. It's slower paced than Italy,
less flashy than Italy, but after you've been there a little while and
have had a chance to catch your breath, you begin to discover that
Holland has windmills. Holland has tulips. Holland has Rembrandts.
But everyone else you know is busy coming and going from Italy.
They're all bragging about what a great time they had there and for the
rest of your life you will say, "Yes, that's what I had planned."
The pain of that will never, ever go away.
You have to accept the pain, because the
loss of that dream, the loss of the plan, is a very, very significant loss.
But if you spend your life mourning the fact that you didn't get to Italy,
you will never be free to enjoy the very special, the very lovely things about
Holland. | ||||